Archie Battersbee’s family call for change following 12-year-old’s death | UK News
Archie Battersbee’s family has called for a review to be held after the boy’s death, saying they want “something good to come out of this tragedy”.
The 12-year-old boy, who has been in a coma since April, Died at Royal London Hospital on Saturday, after weeks of legal wrangling brought his life-sustaining treatment to a halt.
He is being kept alive with a combination of medical interventions, including ventilation and drug treatment.
Doctor Archie For the past four months, he has declared he is “brain dead” but his family has argued for him to continue on life support in the hope that he will eventually recover.
His parents asked the Supreme Court, the Court of Appeal and the European Court of Human Rights to ask him to move to a workhouse to die, but all were refused.
Now, Archie’s family has vowed to call for “change” to ensure no one else has to go through such a “horrible experience”.
“We want something good to come out of this tragedy and the terrible experience we’ve gone through by the system,” they said in a statement, published through the Christian Legal Center. Church, which has supported the family’s case.
“No parent or family has to go through this again. We were forced to fight a relentless legal battle over the hospital trust while facing an unimaginable tragedy. Okay.
“We were cornered by the system, stripped of all our rights, and had to fight for Archie’s true ‘best interests’ and the right to live with everything that was against us.”
‘There’s nothing formal about watching a child suffocate’
Archie’s family continues to say they have faced “unbelievable” pressure due to legal process and called for an “investigation and find out through the appropriate channels what happened” to their “pretty boys”.
After his death, his mother, Hollie Dance, said her son “fought until the very end” and she was “so proud to be his mother”.
Ella Rose Carter, Archie’s eldest brother Tom’s fiancé, said on behalf of the family: “He was given medication at 10am and his readings remained stable until two hours after they arrived. Remove the ventilation system.
“Watching a family member or a child suffocate, absolutely nothing is decent.
“We hope no family has to go through what we went through. It’s barbaric.”
Alistair Chesser, medical director of Barts Health NHS Trust, which runs the hospital where Archie died, said the staff provided “high quality care with extraordinary compassion”.
He said: “This tragic case not only affects his family and caregivers, but also touches the hearts of many people across the country.
Ms Dance had previously called for reform through “Charlie’s Law” – a campaign that tries to garner support and choice among parents of sick children in the treatment of their children.
It is run by Chris Gard and Connie Yates, who were engaged in a public battle with doctors over the treatment of their son, Charlie Gard, in 2017.
How a mother fought to save her son
Archie is just the latest tragedy to be played out in public
Charlie has a rare genetic condition called infant-onset encephalopathy, mitochondrial DNA depletion syndrome (MDDS), and is on life support.
His parents wanted to take him to New York for treatment, but the doctors who cared for him at Great Ormond Street Hospital decided his treatment should end.
The 11-month-old boy died in July 2017 after a Supreme Court judge ruled in favor of the doctors.